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Illness Narratives, Networked Subjects, and Intimate Publics

New York University 239 Greene Street, Floor 8, New York, NY, United States

Through the relational production and circulation of personal narratives about experiences with pain and loss, new publics are created while networked subjects are negotiated. This colloquium addresses the productive capacities of illness, disability, death, and dying, asking how individuals use online platforms or other forms of new technology to both reproduce and contest popular discourses surrounding these everyday phenomena.

Disease: between social imagination and political fact

Hôtel de Région 1 esplanade François Mitterand, Lyon, France

How do the representations of a disease influence the means set up to fight it and the care provided to patients? What role do worst-case scenarios and other fictions play in health safety policies? The risk of stigma incurred by those who suffer from diseases (HIV/AIDS, Ebola…) serves to remind us that we cannot ignore the social and political significance of a medical diagnosis.